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NEWSLETTERS & INFORMATION
We like to share information here that we gather from newsletters we receive that we think will be of interest to you.
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INTERNATIONAL LYMPHOEDEMA FRAMEWORK
> August 2023
 AUGUST 2023 | |||||
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LYMPHO NEWSDear friends, | |||||
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European patient organizations unite to put compression #UnderPressureIn 2020, 24 patient associations from across Europe came together to create and co-sign a manifesto outlining the challenges, wishes and needs for those living with lymphedema. The year after, a smaller group of patient associations decided to work on a campaign for World Lymphedema Day highlighting the one thing lymphedema patients all have in common — compression garments. It was decided to put compression #UnderPressure. A website has been launched dedicated to informing patients and carers about compression garments. Despite national borders, cultural and linguistic differences we are united for the benefit of the patients, we are stronger together — www.compressionineurope.org | |||||
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And, to hear more about what our international frameworks are doing worldwide, just click here
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Industry supportThe work of the ILF would not be possible without industry support. We thank the ILF Industry Partners for their continued engagement and support. | |||||
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INFORMATION:
Deletion of single gene promotes growth of functional lymphatic valves
Targeting the gene Foxo1 may offer an early treatment approach for hereditary lymphedema
Date:August 10, 2021Source:University of South Florida (USF Health)Summary:A preclinical study unexpectedly identified the gene Foxo1 as a potential treatment target for hereditary lymphedema. Valve loss or dysfunction that disrupts the flow of lymph fluid is strongly associated with lymphedema in patients. But no one has discovered whether new valves can be grown or if defective ones can be fixed. The new study, using a model of human primary lymphedema, shows that both are possible
READ MORE HERE: https://www.sciencedaily.com/releases/2021/08/210810110953.htm?fbclid=IwAR0mx2dPhExbkZVgSOdTBW8y4x781vwxIiAk5gw6jMGFS86wUETacQIeo5s
Oncology Partner Spotlight
This week, IMD Health is highlighting our many valued oncology partners. Our partnerships with these leading patient organizations are essential in our commitment to providing easily accessible, up-to-date digital health education to healthcare providers, patients, and their families on the IMD platform. Access to patient resources on our easy-to-navigate tool facilitates conversations with healthcare providers and ensures patients are better prepared to understand and manage any challenges throughout their cancer journey.
Browse our health associations page to discover content from the following oncology partners:
FEATURED RESOURCES FROM OUR INDUSTRY PARTNERS
To view content from our industry partners, please make sure you are signed into your IMD Health account.
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Tips for a Healthy Summer
For many patients, summer marks a time for camping, travelling, beach fun, and socializing with family and friends in the sun. For healthcare professionals, it means that more patients are suffering from heat exhaustion, sunburn and bug bites.
This summer, encourage your patients to move more and sit less, wear sunscreen and insect repellant, stay cool and hydrated, and quit tobacco use. Equip them with resources from trusted sources on IMD, like the Public Health Association of Canada, Caring for Kids and the Melanoma Network of Canada to help them prevent harmful conditions like Lyme disease and skin cancer.
FEATURED RESOURCES FROM OUR INDUSTRY PARTNERS
To view content from our industry partners, please make sure you are signed into your IMD Health account.
VIEW THIS MONTH'S UPDATED CONTENT
Check out some of our recently updated topics!
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New look, same incredible platform!
The IMD team is very proud and excited to showcase the latest version of the IMD patient engagement platform to our user base of healthcare professionals! Not only has our platform received a major facelift - but significant features have been added to ensure that you are equipped with the best tools to inform and engage your patients on their treatment plan leading to a happier, healthier life!
With major accessibility improvements, the ability to create custom information packages for treatment needs, improved patient email summaries and more, be sure to check out the new and improved IMD platform.
Please use your credentials to sign in to your IMD account, and contact support@imdhealth.com if you have any questions. Learn more about IMD's awesome new features that are available to you here.
NEW RESOURCES FROM OUR INDUSTRY PARTNERS
To view content from our industry partners, please make sure you are signed into your IMD Health account.
Evenity's healthcare professional and patient resources are now available within the Osteoporosis topic - including patient brochures, a self-injection guide and video, and a dosing guide.
Find information about EVUSHELD for the prevention of COVID-19 illness in adults and adolescents who have a weaker immune system and are unlikely to be protected by a COVID-19 vaccine. Resources include a patient brochure, introduction, summary, and clinical study overview.
Find resources for healthcare professionals including a body map counselling tool, a checklist to identify and monitor patient signs and symptoms associated with adverse events related to Pembrolizumab, and other tools.
PAAB aims to protect Canadians by ensuring that advertising to HCPs is truthful, balanced and evidence based. We need your input to ensure that drug advertising meets your expectations and needs. Please take 5 minutes to complete the survey.
Find new healthcare professional and patient resources from Prolia within the Osteoporosis topic, including patient FAQs, leave behinds, self-injection guides, and more to support you and your patients during and post consultation.
Find new healthcare professional and patient resources from Repatha within the High Cholesterol topic, including patient brochures and FAQs, self-injection video tutorials, a dosing card, and helpful patient profiles.
VIEW THIS MONTHS UPDATED CONTENT!
170 conditions and procedures have received updates on the IMD platform! These conditions and procedures include:
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Information on Truncal Lymphedema:
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HELP YOUR PATIENTS HAVE A HAPPY, HEALTHY SUMMER WITH IMD!
For many patients, summer marks a time for camping, travelling, beach fun and socializing with family and friends in the sweet heat. For healthcare professionals, it means that more patients are suffering from heat exhaustion, sunburn and bug bites. Now is the perfect time to share resources with your patients to help them have a healthy and happy summer.
The IMD Health Patient Engagement Platform offers resources on summer Health from trusted sources like the Public Health Association of Canada, Caring for Kids and the Melanoma Network of Canada to better engage and educate patients prepare for the outdoors and prevent harmful conditions like Lyme disease and heat rash. With content that covers tick hiding spots, insect repellents, permethrin-treated clothing, and more - IMD has the educational resources your patients need to have a safe and healthy summer.
NEW RESOURCES FROM OUR INDUSTRY PARTNERS
To view content from our industry partners, please make sure you are signed into your IMD Health account.
Do your patients have pollen or outdoor mold allergies? Aerobiology Research Laboratories can help you educate your patients on how to reduce health effects and improve their quality of life. Send your patients a resource package on accessing daily pollen levels, symptom trackers, and more tips to minimize exposure.
IMD offers resources for healthcare professionals and patients on Aranesp coping with anemia due to Chronic Kidney Disease, including disease state information, healthy living tips, self-injection guides, and more to support you and your patients during and post consultation.
Cetaphil has resources to help support your patients suffering from dry, sensitive skin, under the following condition areas: Acne, Rosacea, Atopic Dermatitis (Eczema), and Psoriasis.These resources can easily be emailed to a patient as part of their consultation.
Access content from DDAVP within the Bedwetting and Bedwetting: What you need to know topic that includes key information for HCPs, including a new infographic. These resources can easily be emailed to a patient as part of their consultation.
Find new healthcare professional and patient resources from Prolia within the Osteoporosis topic, including patient FAQs, leave behinds, self-injection guides, and more to support you and your patients during and post consultation.
Find new healthcare professional and patient resources from Repatha within the High Cholesterol topic, including patient brochures and FAQs, self-injection video tutorials, a dosing card, and helpful patient profiles.
THE IMD MEDICAL LIBRARY IS GROWING!
Check out this month's new health partners. Their patient-friendly resources are now available on IMD.
Brain tumours are unpredictable, complex, and remain incurable. Their effects are physical, emotional, financial, and can last a lifetime. That's why Brain Tumour Foundation of Canada is focused on giving hope to the estimated 55,000 Canadians currently living with a brain tumour. With a few clicks, you can send your patients engaging resources from Brain Tumour Foundation of Canada using the IMD Health patient education platform.
The Canadian Lymphedema Framework aims to define and promote education for healthcare professionals and patients, to improve lymphedema management and provide access to comprehensive treatment. IMD Health has partnered with the Canadian Lymphedema Framework to bring their medically-vetted patient guides and fact sheets to your fingertips, both to reference during consultations and to email home to patients, family members, and caregivers.
Pancreatic cancer has the highest mortality rate of all major cancers. Pancreatic Cancer Canada is committed to making an impact in raising the survival rate through increasing awareness of the disease and improving patient and family access to specialized care and support at every stage. Empower your patients to believe they play an instrumental role in the trajectory of their cancer with Pancreatic Cancer Canada's various resources including treatment options on IMD.
VIEW THIS MONTHS UPDATED CONTENT!
170 conditions and procedures have received updates on the IMD platform! These conditions and procedures include:
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Additional Information and ResourcesPDF Copies of the LIMPRINT Reports Inform Yourself and Take Control Click here to read the article The Lymphedema Guru
Lymphedema Footwear Paradigm is there to help you find the RIGHT footwear for lymphedema. Please click here for more information on a few solutions for moderate to severe cases of lymphedema.
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Inform, educate, and support your patients with kidney cancer during kidney cancer awareness month!
World Kidney Cancer awareness day was on June 16th. On this day, the global community came together to raise awareness of the issues that patients and caregivers face everyday - and IMD is here to support healthcare professionals increase their patient's understanding of this disease. Be sure to effectively educate your patients about kidney cancer with IMD's library of engaging pamphlets, diagrams and videos from our partnered oncology health organizations including the Canadian Cancer Society, Wellspring Cancer Support, and Young Adult Cancer Canada. All resources can be sent home to patients to review in their own time, and with their caregivers.
NEW RESOURCES FROM OUR INDUSTRY PARTNERS To view content from our industry partners, please make sure you are signed into your IMD Health account.
Do your patients have pollen or outdoor mold allergies? Aerobiology Research Laboratories can help you educate your patients on how to reduce health effects and improve their quality of life. Send your patients a resource package on accessing daily pollen levels, allergen forecasts for the season, symptom trackers, and tips to minimize exposure.
Find AMGEVITA brochures and self administration videos for patients with plaque psoriasis, hidradenitis suppuratuva, uveitis, crohn's disease, ulcerative colitis, rheumatoid arthiris, ankylosing spondylitis, and for children with polyarticular juvenile idiopathic arthritis or uveitis.
Find Enbrel brochures for patients with plaque psoriasis, rheumatoid arthritis, psoriatic arthritis, ankylosing spondylitis, and for children with pediatric psoriasis or juvenile idiopathic arthritis, as well as information about Enliven, the Enbrel support program.
Of all the kidney cancers, renal cell carcinoma (RCC) is the most common. Click here to learn more about how Merck Canada is shedding light on renal cell carcinoma, and to watch their informative video on RCC in Canada.
Find a guide to Otezla treatment for moderate-to-severe plaque psoriasis, psoriatic arthritis, or oral ulcers associated with behçet’s disease. Send Otzela's resources home with your patients to review in their own time, and with their caregivers.
Stelara's patient and healthcare professional content is available in crohn's disease and ulcerative colitis, including a Biologics Comparison Tool. These resources can be sent home to patients and their caregivers for self-led patient education. View this month's updated content! 170 conditions and procedures have received updates on the IMD platform! These conditions and procedures include:
Connect with IMD on Social Media!
Questions, comments or concerns? Email info@imdhealth.com for further inquiries. IMD Global Health Corp., a subsidiary of CloudMD Software & Services. |
Lymphedema Association of Ontario
Mailing Address: 262-2869 Bloor St. W., Toronto, ON M8X 1B3 Canada
1-877-723-0033 | 416-410-2250 | info@lymphontario.ca
Copyright 2021 Lymphedema Association of Ontario | Charitable Registration # 87165 5049 RR0001 | Disclaimer | Privacy Policy |